Welcome to the porphyria drug database for the United Kingdom

The Norwegian Porphyria Centre (NAPOS) is responsible for the development of this multi-language drug database.

The UK national version of the porphyria drug database is based on the Read Codes and Drugs Appliance Directory (NHS Connecting for Health Services Support Unit) of medicines available in the UK. This includes both generic and UK trade names. Pharmaceutical agents that are not available or licensed for use in the UK are not included. Absence does not therefore imply that the agent is unsafe or has not been reviewed.

Financial support

The British Porphyria Association (www.porphyria.org.uk) contributes to the maintenance and development of the UK specific database service through an annual fee. Anyone in the UK who wishes to contribute should contact the Cardiff Porphyria service (porphyria@cardiffandvale.wales.nhs.uk).

Specialist advisory service

In the UK a specialist advisory service on the safe use of drugs in porphyria is available from the Welsh Medicines Information Service (WMIC) in collaboration with the Porphyria Service, Department of Medical Biochemistry and Immunology, University Hospital of Wales Cardiff. The service may be used by healthcare professionals and individuals with porphyria within the UK. Further information and advice in specific circumstances can be obtained by telephone ((0)29 20743877); Fax ((0)29 20743879) or email (welshmedicines.information@cardiffandvale.wales.nhs.uk)

EPNET public health project

WMIC participates in the EPNET public health project which has received funding from the European Union, in the framework of the Public Health Programme. EPNET is a project arising from the European Porphyria Intiative (EPI) (www.porphyria-europe.org) funded by the INSERM. A pharmacist at WMIC will ask your consent to follow up all requests for information to the Centre about the safety of medicines in acute porphyria to enable us to collect more accurate clinical data on whether these medicines are safe or unsafe. If you would like to participate in the project please contact us on telephone number (0)29 20744861.





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